Social media paints a pretty picture.

Social media paints a pretty picture.

As humans, we highlight the good days. The fun memories. But the truth is, that 2 second snapshot glorifies reality. It doesn’t show the tears, the struggle, the sleepless nights, the 100 other pictures that were taken to get that 1 decent shot.

I often hear from others how happy Audrey is. Although for the most part this is true and we are so lucky this is the case, I tend to not document the hard moments that happen each day. The tears from therapy and the overall exhaustion aren’t what people want to be reminded of (including myself)

But they are there.

Not a day goes by without me wondering am I pushing her too much? Am I making the right decision continuing to add on more hours of therapy? When does it become too much?

My days during the week consist of driving to and from multiple therapies all around the sacramento area, having therapists in and out of my home, trying to squeeze in enough meal time for Audrey and hopefully a nap so we can make it through her next therapy that afternoon.

It’s stressful and often physically and mentally exhausting.

I try to balance it all with park dates and lunches with friends but the older she gets, the more I find my life really fitting into that “special needs mom” box.

So for now, I have decided to step away from social media. I will keep my blog and Instagram for all things CASK related to continue to spread awareness. But Facebook is going to take a break!

If you haven’t followed my blog site, please do so by clicking the “follow” button once directed to word press.

Thanks again for all the continued love and support on this wild journey of ours. We wouldn’t be here today without you all.

Look for my next blog post late August which will update you on Audrey’s newest intensive therapy adventure. #kickingcask

Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK. View all posts by Rachel Alves