Virginia or Bust 

Hi all! Well, we survived our first big trip and boy did Audrey kick some major CASK booty!  She did amazing. After having a very rough (but pretty typical) night of limited sleep, we hit the road to the airport at 4:30am. We flew from Sacramento, CA to Chicago for a short layover, then Chicago to Roanoke, VA.  What a day! As exhausted as we all are, it was such a smooth and successful trip.  Audrey was entertained by Mickey Mouse clubhouse episodes and some snacks.  But mostly she won everyone over with her happy demeanor and adorable smile!  SHE WAS A CHAMP 

I feel especially lucky to call this sweet girl my own today.  She brings sunshine wherever she goes.

We start her therapy Monday morning so stay tuned! #kickingcask#virginiababy 

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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

23 thoughts on “Virginia or Bust ”

  5. Yay AJ is a jet setter! So proud of you baby girl and your mommy and nana! 3 beauties 🙂 good luck and can’t wait to follow your trip!

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  6. So happy to hear the day of travel was SAFE and Successful! We love you three ladies so much and you all were on my mind ALL day! So excited for this journey ahead. Looking forward to all the progress ahead. 😘

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  7. Sending lots of prayers and love for a safe journey. I hope you are able to learn more and give Audrey all the tools she needs to do her best. The pictures of her are so cute! That’s amazing that she was so good on the plane. I think I would be terrified to take mine on that long of a journey. Lol. I’m so glad you are blogging!

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  10. So happy the trip went well! Looking forward to reading your blog. Love our Audrey so much! She is going to do an awesome job in Virginia! ❤️

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  11. So glad the trip went well! Look forward to reading the blog. Love our Audrey so much and know she will work very hard in Virginia!

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  12. Thank you for sharing your journey….Audrey is brave and beautiful….but so is her mama! Looking forward to hear about all her new growth and adventures!

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  13. Thanks for sharing!! Love all the joy this sweet little girl shares with everyone! You have an army behind you Audrey Jo, and mommy and daddy too!! Look forward to hearing how it all goes!😘👶😍

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