I see you mama.

I see you mama

I see you mama, riddled with anxiety in public because you never know when your child may be triggered.

I see you climbing the play structures with your much older/bigger child because you would do anything to make them happy.

I see you starring off into space or watching other families have a day full of fun without the worry of safety.

I see you playing with the same Disney toys year after year.

I see you smiling and singing silly songs to keep the peace on your walk.

I see you physically struggling with backpacks, adaptive equipment and changes of clothing wherever you go.

I see you turning down invitations that years ago, you yourself use to host.

I see you making connections across the globe to help you get through the hard days and years.

I see you researching centers, therapies and medications for your child that may help you with the daily struggles you face.

I see you questioning that you aren’t doing enough and wondering the “what ifs.”

I see you terrified of the future and of all the uncertainty.

I see you waking up every morning with a hopeful attitude and willingness to try again.

I see you trying to keep your mind and body strong and healthy but most days just doing what it takes to make it through.

I see you wishing for a moment of ease

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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

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