The dream weekend

I was sitting at the airport thinking about what a wild ride the last 9 years have been. The hard days and nights, the hope, loneliness and twists and turns of the unknown. I have grown in this life of never ending grief but it has not been linear. Two steps forward and often three steps back.

Hear me out;

Today I’m grateful for disability.

Sure there are moments I feel so thankful and I never ever regret having my daughter, she is my favorite human.

But today I am GRATEFUL!

Grateful for community and grateful for sisterhood within this community.

You see without disability in my life, I wouldn’t be tethered to these extraordinary mothers. I look up to so many of them and will be meeting another dozen that I’m sure to admire by Saturday night.

This is all because of disabilty parenting.

I may have never used writing as an outlet if my life turned out the way I always thought it would.

Never did I ever think I would become a published writer but HERE WE ARE!

I hope this weekend connects me even more to this world we live.

✨ The best is yet to come. ✨

#TheUnknownAuthorsClub

#DisabiltyParenting

#Community

#AudreyJo

#KickingCASK

#BecomingBraveTogether

#BookLaunchParty

http://Becoming Brave Together: Heroic, Extraordinary Caregiving Stories from Mothers Hidden in Plain Sight https://a.co/d/aDaOGhc

#WeAreBrave

7 of the contributing authors

Becoming Brave Together Anthology linked above

Unknown's avatar

Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

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