“Comparison is the thief of joy.” – Theodore Roosevelt…
But as a parent to a child with a life long disability, every day we live a routine that is so very different compared to the neurotypical trajectory of life.
Same bedtime instead of late night weekends.
Therapy instead of sports leagues.
Specialist appointments instead of play dates.
Life saving medicines instead of gummy vitamins.
Medical equipment instead of “big kid” bike.
Special needs trust instead of college funds.
Nights in instead of nights away.
Toddler toys instead of video games and cell phones.
IEPs instead of report cards and conferences.
The gap rapidly increases every year.
It’s hard to not look at the world and feel like we are watching it zoom right past us most days.
Holding on to her innocence is a bright light but that doesn’t always make it easy to witness her peers grow while we continue to stand still.
Kicking CASK 