Work in progress

I have been thinking a lot lately about how much I have grown as a mom these past few years. I use to focus on Audrey’s diagnosis, wanting to know all the details of her genetic makeup and how to get her to the next milestone. I have slowly come out of the deep dark place I was once in not so long ago. This was done intentionally, lots of hard work (individual therapy and group coaching), surrounding myself with moms who live a similar life and viewing as many accounts and platforms out there regarding parenting a child with a disability. There is still hard. I am a work in progress. There are still sad days and moments. But what I’m realizing is that my focus has shifted. I have more realistic expectations, I have pulled back on specialists and therapies that were causing more stress than help… And let me tell you, it is a beautiful thing.

I don’t know where this life is going to take me in the near future but I do know that I want to be that listening ear for other moms. Some days I don’t feel strong enough to help anyone else but the truth is, anyone living this rare life has a perspective someone can relate to. I hope to be that person. That is my New Year Resolution.

#DisabilityParenting

#KickingCASK

#AudreyJo

#microcephaly

#CASKGeneDisorder

#SelfGrowth

Inclusive playground music in the park fun

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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

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