Audrey’s journey to her 7th Birthday!

Audrey’s birthday is tomorrow… it has my husband and I reflecting on all of her years of hard work!

I remember when Audrey first started physical therapy (9 months old)… her therapist thought we would have her walking by age 3! I held on to that number with so much hope.

When that birthday came and went, I will admit, I felt defeated. What was I doing wrong as a mom? I do all the therapy, all the practice! Why can’t my baby walk yet?

Nonetheless we pushed on, continued to kick CASK. I knew she would walk on her own timeline.

By age 5 she was getting so close. We worked hard even with shut downs and little therapy. Slowly Audrey got stronger.

This past year we saw her strength and now she is well on her way to being an independent walker. We still have work to do but boy am I PROUD!

Check out the U TUBE video my husband compiled! Thanks to his good friend to helping us with some technical difficulties too! (Thanks Joe!)

https://m.youtube.com/watch?v=UQe1y-Tc85Y&feature=youtu.be

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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

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