New year, new decisions

Audrey is 3 now. In most households this means their sweet baby is a big girl, in our house it means transitioning from the early intervention program we have been accustomed to for the last 2 years. Losing her therapy team that has loved and supported our family so much was sad!

Next step:

So, do I choose ABA over school? Do I push for an aide? Is she not ready? Is she safe? Will there be enough eyes to make sure her needs are met?

These are just a few of the worries that have been going through my brain this past month.

Change is hard, transitions are hard. To a special needs family, change brings on a whole new ball game of fear. Am I doing the best thing for my child to receive the most services and support that I can? I sure am trying.

This past month I went to Audrey’s IEP. Although it went much better than anticipated, the placement they offered still didn’t seem like the right fit at this time. Eventually, I could see Audrey thriving in that room but not today.

So after much pondering, speaking with anyone and everyone who has worked with Audrey and making pros and cons lists of all sorts, my husband and I decided to hold off on the school placement right now.

I had to really think about what was going to help Audrey gain the most

growth cognitively and physically.

This means that we take on ABA therapy full time and in addition, I will take her to all of her PT, OT and Speech services as well. We have a busy schedule on our hands but hope to see great results!

Some things we learned Audrey loves this month:

*Doughnut holes 🙂

*Staying at hotels

*Jumping in bounce houses.

Our happy girl continues to make slow but steady strides and each new experience proves her growth! Looking forward to seeing more progress from our determined rockstar #kickingcask

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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

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