Final week of starfish intensive 

Monday:

*Audrey had a great Monday start. Tons of standing without any complaining! Using both hands to help pull herself up from a squat or sitting position. And she attempted to crawl up 3 stairs (multiple times)  

*She wore orthotics for almost 2 hours! 

*theratogs for almost all session 

Daddy even got to see her in action and he was impressed! 

*she made it to 3 sets of 30 reps for her reciprocal leg presses 

Day 2

Got to work on the platform swing standing today! Reaching and holding on practice as well as balance coordination and control. 

Day3

3 sets of 30 reciprocal with 1.5 weight instead of 1lb! Kept orthodoics on 2.5 hours! Lots of squats to stand today .Was not a fan of the gait trainer (walker). Needs to build a little more strength with standing! 

Last day

Finished the week off with a post assessment, reciprocal cage work and the bike. She even got a certificate of completion and a star fish shirt 😊

Next steps:

Next month is going to be big! We have assessments with our insurance provider to hopefully qualify for more therapy time, also applying for CCS for Audrey (California Childrens Services) to hopefully get more services as well, and I also have the school district transition meeting to see about placement for this coming year! 

Looking into another intensive program to do that is more local this January as well! 

 Lots of Changes will be happening come this fall/winter for us. Exciting but a bit overwhelming. Starfish therapies helped her build strength and endurance. So now, practice practice practice at home! 

I will focus on working with Audrey on the following:

*Squat to stand positions

*Wearing orthotics for at least 1 hour each day

*Getting her to pedal a bike we have at home

*working in her gait trainer walker more 

We will continue to #kickcask every single day! 

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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

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