Week 1 wrap up! 

These last 4 days have been full of hard work! Audrey increased her time and duration on most of the PT activities each day.  Here is a recap of some things they worked on:

Day 2: 

*Adaptive bike for about 20 minutes. 

*Muscle isolation bungee cords (she was not a fan of) 

*sit to standing activities with orthotics on for 40 min total (most she has ever worn them) 

*Cried in cage work today which is never easy to see but I know how much it will help her in the long run. 

Day 3: 

she tolerated 25 leg rotations compared to 20 from the day before 

Orthotics on for 1 whole hour 🙂 

Was amazing in cage no crying!! 

Day 4:

Increased her cage time and did 30 reps of the leg rotations (reciprocal pattern)

Rode bike for 30 minutes outside today! Quite the workout! 

Used theratog body suit while crawling to give her body more input. 

It’s been hard work but so amazing to see them push her limits.  Lots of tears and 2 year old moments but my little warrior is such a fighter.  Audrey’s favorite activity was doing ab workouts on the medicine ball and nursery rhymes almost always stopped her fussiness.  Excited for next week but happy to be home for the weekend.  

Next week we will get to work with a few different therapists.  It’s great to see how she reacts to other professionals.  Audrey scarfs down her lunch and quickly takes her nap after therapy because she works hard the entire time we are there.  


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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

3 thoughts on “Week 1 wrap up! ”

  3. Wow! That’s quite a workout. Way to go Audrey!! Way to go Mommy and Daddy too since it has to be hard yet rewarding to watch your little girl work so hard. Hang in there everyone!!

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