Full heart 

This week I have cried lots of happy tears! Happy tears haven’t happened in awhile around here…so it is pretty exciting! Since we have been back from Virginia, I have been searching for more. More therapy, more hours with professionals, more tools, more exposure for Audrey. Well I found it! There is an intensive physical therapy program that she will do this August in San Mateo, CA. 

The clock is ticking for her to get moving because it is a personal goal of mine to have her walking by the time she starts preschool at 3 years old. It is also a known fact that early intervention is the way to give your child the best possible outcome. This past year I have been feeling that goal may be a bit out of reach…until this week! 

We started fundraising for the therapy program and in a matter of days have sold lots of tickets and had tons of donations from people. It is truly heartwarming to see your community come together. We are so lucky to have family and friends to love us and spread awareness. A huge thank you again for all those who have reached out to us and contributed to this. We are over the moon for this therapy and it couldn’t have come at a better time because Audrey has officially started to crawl this week! Something I have wished for and watched her struggle with for over a year. Such an amazing thing to see. It needs a lot more practice and fine tuning but we can officially say we have a crawler! She is #kickingcask every single day and I am so very proud of her. Most days I feel like I don’t do enough for her and wish for so much more. But today I’m just smiling. Things are so hard and always just out of reach for my precious girl and as a mom I struggle to see this. Knowing she can, just on her own timeline, makes my heart burst with joy. My sweet, dedicated, strong warrior baby. She amazes me every day! Can’t wait to update you all this August with her therapy progress! Stay tuned for many more blog posts 😘

Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK. View all posts by Rachel Alves