Ever since I was a child, I have always worried about way more than I should. I worried about school, worried about my weight, worried about my future etc…but then I became a parent. Not only a parent but a special needs parent on top of that. My worrying gets the best of me and it’s something I’m always trying to do less of. Because worrying isn’t going to change anything about our situation. Worrying isn’t going to make Audrey walk or talk. Worrying definitely isn’t going to help her gain weight or help her sleep better. Worrying isn’t going to change what school program she gets put in or whether or not she will need life long services and aide.
So although my worrying will never disappear, I’m trying to be more proactive. Over the past week I have been making endless phone calls, writing emails and looking up information on the web for more. More services, more hours for Audrey to learn and grow.
Today I took Audrey to her pediatrician for a weight check. We do this every 2-3 months. She gained a few more ounces but we can’t seem to get her past 18 lbs! She weighed in at 18 lbs 8 oz today. Another worry right?
Along with referring us to a dietician and putting in a request for a hip and back X-ray (on going things we have to check up on with Audrey), we discussed other possible services today. I think it was a successful appointment and hope that it will begin my newest journey of me fighting for more. Although the system is hard especially for “rare cases” such as Audrey, I’m thankful for a select few doctors who listen to my wants and needs. Let’s hope this is one less thing I have to worry about!
Kicking CASK 
So true my daughter! We all need to be more proactive and worry less! You are doing amazing things each and everyday for Audrey. You truly are a wonderful mother and everyone around you knows it. Audrey loves you so much and so do we!! Keep up the great work you are doing, worry less and try and enjoy the moments more. ❌⭕❌⭕❤
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Your mom is so right, Rachel, you are an amazing mom to Audrey. All the worrying is not going to change things and is not good for you. Easy for me to say, LOL! Remember baby steps, Audrey did gain weight even if it is not as much as you would like. Take care of yourself, so you can be there for Audrey. Know that we are on this journey with your family. All our love! ❤️😘
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Since I’m a born worrier I can’t give you any advice. All the worrying in the world is not going to change anything. We just have to trust that God will care for us. I know He will watch over you and Audrey. Prayers are coming your way.
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Thanks for sharing her apt update and writing this blog! Women have a lot of pressure in regards to image, balancing work and family and raising children. This is all very stressful! You’re not alone. It takes work to be mindful and staying present. So happy to hear you are making it a goal for YOU! I think I will work on this too. Thanks rach!
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Can’t even imagine the worries of a special needs parent. Parenting is hard! Audrey looks happy and she will just be “petite”! Keep up the great work and like everyone else said, make sure to take time for yourself when you can. Sending good thoughts and prayers your way.
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