Back home 

It was a Long flight home and I seemed to be much more jet lag than I was when we got there! All my emotions set in realizing that we really were back to our life. All I was thinking of was all the work I am going to have to put in to making sure Audrey continues to progress. We started playing with Daddy in her room showing off her skills and to my surprise she was already playing so much better with HER toys! She was dropping balls into a toy ramp that her therapist didn’t use in VA, she was able to clean up all of those 4 balls into a plastic bag when asked, and she sat on step stool to play with a toy too! She even was sitting stabilized on her little toy motor bike as well! These are all things Audrey couldn’t do before our trip! As my husband beamed with joy, I thought “yes!” Generalization of toys CHECK! 😊

Can’t thank Dory (her OT) enough for all that she has done for our family. It’s not going to be easy but knowing she has retained those skills enough to continue at home leaves me with a lot of hope! #kickingcask back in California already!

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Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK.

3 thoughts on “Back home ”

  1. Well worth all the anxiety, stress and even the sleepless nights to see the amazing progress of our Angel. She “rocks” and is capable of so much more!! Mommy and daddy (and family) are going to continue to work with and see progress with our amazing Audrey!!! Love you all so much!!! You go baby girl XOXO

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  2. Audrey is going to continue to show all of us what she can do! She is an amazing little girl and loved by so many! ❤️

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