The communications director from VTCRI (Virginia Tech Carilion Research Institute) contacted me on Monday asking if I would do an interview with the Roanoke Times! They wanted to hear our story and are interested in the fact that VTCRI is the only research team in the world that is exploring CASK’s role in neurological disorders. We had quite a group in our hotel room but Audrey loved it! They got some of her therapy on video and she often stopped to pose for the nice camera lady 😊 Both camera crews did interviews, video and pictures!
VTCRI also will be printing the story on their website and paper as well. As soon as we have the clips and articles, I will share the link.
The reporter said he knows someone at Sacramento Bee too so he was going to see if they would run it as well!
It is pretty cool to know that us being here is not only making a difference for Audrey but we are helping to raise awareness and getting the word out which could potentially help other CASK families. Such great exposure!
Audrey continues to progress with therapy and is still so so close to crawling. Today she has started to pull her knees in along with her hands! One more full therapy session tomorrow followed by post assessment on Thursday. I can’t believe our time here is almost done. A very bittersweet feeling. I will miss her therapist so much but I know that everyone here has given me so many tools to use at home.
I couldn’t of asked for a more productive and informative trip. I see Audrey becoming a little toddler for the first time which brings me so much joy. I will forever be her number one advocate. #kickingcask always!
Kicking CASK 