Back to reality 

Tuesday Audrey came down with a cold so Wednesday’s therapy was a bit modified. She still worked hard but wasn’t pushed as much because of her not feeling well. 

But we did get to meet one of VTCRI’s neuro motor early childhood learning specialists who does a lot of their speech assessments at the clinic. She came to watch Audrey. It was very hopeful to hear her say that Audrey was making lots of word approximations. She said that she wouldn’t doubt that she would be saying some words in the next year. Very reassuring to hear such positive news because language is such a slow process for most of our CASK kiddos. I know my baby has a lot to say, we just have to build up her muscles to do it! 

I will be given the home program today as well which the therapist will go over with me tomorrow at our last assessment. Still can’t believe our time here is over. Love all the connections we have made and feel the support from them all! We love you VTCRI! Very thankful for this amazing opportunity and hopeful that we will be back in a few years.  

Can’t wait to share the news stories once they have them up and running. Stay tuned on Audrey continuing to #kickcask 

Our wonderful therapist Dory!  We love you! 

Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK. View all posts by Rachel Alves