After our last weekend here in VA, I’m feeling anxious for this week of therapy. Starting to get a bit homesick and done with hotel living but I don’t want to leave in fear that Audrey’s progress won’t continue. I did some work with her this weekend and followed the therapist’s suggested “homework”.
Audrey did okay but doesn’t respond to me the same way. She is not as compliant and doesn’t work as hard for me. As a mom, it is hard to put that “therapy” hat on when all you want to do is play, cuddle and laugh with your baby.
I am so fortunate to have so many family and friends that support and love us. But it’s not easy. It’s not easy seeing them get to be parents and watch their children thrive. It’s not easy knowing that everything is going to be hard work for my baby.
Seeing your child struggle with anything is so hard as a parent, let alone seeing them struggle with everyday tasks.
I know I am the luckiest mom to have this beautiful sweet girl and I can’t imagine my life without her. But I do wish for her to have a childhood where she gets to just be a child.
This is a battle I know I will always fight. I have been told by other special needs moms that each year you accept a little more, your reality adjusts. So that is what I will focus on. On to week 3 of #kickingcask 👊🏻
Kicking CASK 