Balancing it all 

Both Saturday and Sunday night Audrey was more restless going to sleep than she had been during the week… I can’t help but think this is directly correlated to her therapy. Her body didn’t work as hard on the weekend but first day back to the grind and she slept better last night. This is good to know and see but also means I have to have her working all the time, which isn’t realistic. Finding a balance is something I will have to work on.  It does amaze me though that as hard as she works, she still only takes her short 50 min cat nap each day! Her little body works differently than most. 

Lots of hard work today (week 2, day 2) Crawling practice ended with lots of tears. That was very hard to hear and see. But just like everyone else, she has to learn to be mad/frustrated when something is hard and be able to move on! 

A very hard thing for a mom to accept though but I know it’s for the best. She’s becoming so much more independent and even ate cherrios off of a fork today for the first time!! 

She is so much more engaged in the toys shes play with and is actually playing appropriately with them! Putting her pacifier in her mouth is something they have been doing to keep her from mouthing toys and it is allowing her to focus on playing.  Such a win!

Every day I’m so proud of the work she puts in. My little fighter ❤

Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK. View all posts by Rachel Alves