Ready for week TWO

Monday-Friday while here in VA, Audrey is receiving almost a YEARS worth of therapy in 3 weeks compared to what we get at home. I wish that wasn’t the case but it is. One of the things this research is trying to prove is that these kiddos need more… more intensive therapy and more time to develop the motor planning piece of it all.

My priority once we get back home is to try and seek out as much therapy and exposure as possible for Audrey but my fear is that it will all be up to me to keep the momentum going.

The good news is that I know what she is capable of! I always believed in her but seeing it develop so quickly is magical.

We had a fun weekend with a science museum visit, zoo adventures and some down time but bring it on week number 2!

Author: Rachel Alves

Hi there! I am a special needs mom to a beautiful, sweet girl. Audrey has a mutation on her CASK Gene. This is a rare genetic disorder that effects her globally. It has caused a seizure disorder as well as gross motor, fine motor and speech delays. A Microcephaly diagnosis comes along with it as well. Our last 8 years have been filled with therapy, learning about our daughter's disorder and also learning to cope while finding joy. Thank you for taking the time to read about our journey. For more information on the CASK Gene, please visit my Instagram @alvesmomkickingCASK. View all posts by Rachel Alves

6 thoughts on “Ready for week TWO”

All these pictures make me so happy 😊!! Glad you all are getting to enjoy yourselves and getting the best therapy for Audrey! The best of both worlds! 🙏👏🙌

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